Support and Life Reconstruction for Living with HIV-infected Hemophilia in Japan

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1 ,**2 The Japanese Society for AIDS Research The Journal of AIDS Research : HIV HIV Support and Life Reconstruction for Living with HIV-infected Hemophilia in Japan Yoshihiko YAMAZAKI Department of Health Sociology, Graduate School of Medicine, the University of Tokyo + + HIV,* +330 HIV HIV +32* HIV HIV,* HIV - + /** HIV HIV HIV, HIV HIV HIV HIV +* - participatory research,**. */ +,, +*, ++ - HIV,**.,**/ -. QOL +332 HIV HIV,**+ *, / HIV +,, +-,**/ : ++- ** ,**2 +* - */ HIV */,31,**. */./. 0,/1-3.. HIV,**/ +, HIV

2 The Journal of AIDS Research Vol. +* No. -,**2,*** +, HIV 3 */ 1 AIDS HIV ,2- */,, 1, -2., 3. -,/, 32 AIDS 32 AIDS, /,.* , HIV /.. 3,+.. +,. + +*. 3 2 ADL - 2, *. / /*,.* */ + -/.. CD. HIV AIDS HIV *,3 32 AIDS CD. 32 HIVC,** ml */ /,/. 3 HIV */ C,-..*. 1,3./ CD. HIV 1 1/./ 0,. 0 /1. 0 / / 32 AIDS AIDS General health +/., 32 +,. 1 + self-rated health, SRH, C, C HCV,, /*. -* 1*. 2 HIV ,* / C HIV C 32.* 3 +./ +/

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6 The Journal of AIDS Research Vol. +* No. -,**2, * /. 3 /0. 0.,. 0.*., HIV.-.. HIV *.- -*. 1,,. 1,+. +,*.-, N,/1 +, -.,342.*4, -*4-,* / /,04, +40., * / +04/ -+41,143,,4..4*.4., ,+4+,.4+ *42 *42 +4, +4, 24/.42 +,4* +040 /4, /4,.4* 24-,4* ,4. *42, / *41,4/ -/43,*4-,4+, / +41.4* +4,,42 +4, +4, *4. *42 *..4* 242,,41 +* *4. 24* * *4. +4, *42 / / -*

7 Y Yamazaki : Support and Life Reconstruction for Living with HIV-infected Hemophilia in Japan /, HIV HIV +* */ - +0 */ HIV */ - HIV *.3., SNW,/. 2 /*. SNW */ +*.* SNW +*,2. 3 +/./, - - HIV HIV HIV N +*,.* 0-42,14+ 34, +*4* -34, /*42 *4-2, *4- ++4, -+4/ /14- *4/*,-3.-4/ -04*,*4/ //40 *4..,-2.*4- -/4-, *4/3,.*,/42,/4*.34, 24-, *4/3,-3 0.4*,/4/ +*4/,243.-4/,140 *400, -,-3..4.,/43,341 +/4/ -,4, /,4- *4//, ,,4. 0, / 2+41 *4., HIV,.* *4*,/42.,4+ -,4+ *43*,.+ -,42 -+4/ -/ /4, *411, * , 1142 *4/1,.*.34,,/4*,/42,-42.*42 -/4. *41, HIV,-3 /04+,-4*,*43.*4, --4/,04. *42. + * +,,, +** +/*,*

8 The Journal of AIDS Research Vol. +* No. -,**2 HIV,* 2-. -* -0., HIV GHQ HADS HIV HIV -* -* +, *,,.* HIV 1 HIV adversarial growth stress related growth posttraumatic growth +,. 0 perceived positive change benefit finding /..,./. 2 -,. 2,0./ * HIV HIV -* +* + */. +, HHI Herth Hope Index +3, +,.2 -+., 1+., HIV, - +* -* -*.* GHQ-+, GHQ-+, GHQ,* -*..3. +/+,+

9 Y Yamazaki : Support and Life Reconstruction for Living with HIV-infected Hemophilia in Japan + HIV +/,,,

10 The Journal of AIDS Research Vol. +* No. -,**2 /2., 0* GHQ-+, * HADS HADS 1* HIV,*,2., HIV 0* GHQ+, HADS 2 -* HIV HIV,* HIV +* HIV HADS ADL HIV HIV HIV +* 2* QOL 1*. N,.. n ( *4, +,- /* / / , * * /-,+41 1, ** +/-,-

11 Y Yamazaki : Support and Life Reconstruction for Living with HIV-infected Hemophilia in Japan,**/.. HIV : HIV HIV / HIV : HIV 0 HIV : HIV,**,. +* 1 HIV : HIV,**- HIV -,**-. 2 : HIV,**1 ++ -*,+ 3 :HIV HIV +* Charmaz K : Experiencing chronic illness. (Albrecht GL et al. eds) Handbook of Social Studies in Health and Medi-,**. */ HIV cine, London, Sage, p,11 p,3,,,***. ++ : +- + : + ++,**,. +, Antonovsky A : Health, Unraveling the Mystery of Health ; How People Manage Stress and Stay Well, Jossey-Bass, : ;,**+. +2,* +- : SOC A +2,*-*,2 SOC p. p 2,**2. HIV +. :. + : / : + Chesler MA : Participatory action research with self-help groups : An alternative paradigm for inquiry and action. HIV p 3* American J of Community Psychology +3 (/) : 1/1102, p +*,,*** : HIV, : HIV +,, : +3 life life,.,**+.,**1. - HIV +1 Siegel K, Schrimshaw EW : Perceiving benefits in adver- : HIV sity : stress-related growth in women living with HIV/,***.,**2.,** /.,.

12 The Journal of AIDS Research Vol. +* No. -,**2 AIDS. Social Science & Medicine /+ : +/.- +//.,,***. Japanese general urban population. Jpn J Health Hum +2 Linley PA, Joseph S : Positive change following trauma Ecol 1- ( + ) : -+.,,,**1. and adversity : a review. Journal of Traumatic Stress +1,* Doi Y, Minowa M : Factor structure of the +, -item Gen- ( + ) : ++,+,,**.. eral Health Questionnaire in the Japanese general adult +3 Hirano Y, Sakita M, Yamazaki Y, Kawai Y, Sato M : population. Psychiatry & Clinical Neurosciences /1 (.) : The Herth Hope Index (HHI) and related factors in the ,,**-. +//,/

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