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3 URL ( i

4 ii

5 Alistair Burns Benoit Lavallart Russell de Burgh Nis Peter Nissen Julie Meerveld Anne Higgins Paul McCrone & iii

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7 early detection early diagnosis Burns Burns 46 2

8 Burns GP GP GP GP Lavallart Lavallart MCI GP GP GP GP 1 3

9 GP MAIA Memory Resource and Research Center 2 1 de Burgh de Burgh GP 1 2 GP 3 4

10 GP de Burgh GP GP GP Nissen GP Nissen 3 1 GP GP GP GP 1 GP 5

11 GP GP GP 2 GP 10 1 GP 1 GP GP GP GP Burns GP 1 Nissen Meerveld 6

12 Meerveld GP Higgins Higgins Meerveld 7

13 GP McCrone McCrone QOL QOL 8

14 McCrone Lavallart Lavallart GP Burns 3 case finding 9

15 GP Burns timely diagnosis (early diagnosis) 3 2 advanced care planning MRI 3 1 GP GP GP GP GP GP Higgins GP 3 GP

16 2 1 GP 1 1 Burns I have dementia. I also have a life. Burns I have dementia. I also have a life. 11

17 Memory Services National Accreditation Programme: MSNAP MSNAP National Institute for Health and Clinical Excellence NICE 14 A4 Nissen MCI GP GP 12

18 GP Meerveld GP GP GP GP GP GP GP Higgins 13

19 Cultural Olympiad GP Burns GP Meerveld GP GP 1 GP GP MMSE Mini Mental State Examination CT 14

20 Burns 2 MMSE CT 1 Nissen Burns Burns 1 15

21 16

22 de Burgh GP 1 17

23 advanced care planning 65 1 de Burgh 18

24 Nissen GP integrated intervention 2 Nissen 1 GP 19

25 2 GP 1 Meerveld Meerveld 2005 GP GP 20

26 GP GP 1 Higgins Higgins NHS 1 21

27 NHS 1 Burns individual budget Burns Higgins GP de Burgh

28 MAIA MAIA Lavallart MAIA MAIA 1 MAIA PRISMA 6 1 GP 2 MAIA 3 23

29 1 1 1 MAIA McCrone McCrone Higgins 1 Higgins personal budget 24

30 1 MAIA 2 MAIA 1 Lavallart MAIA Lavallart MAIA PRISMA

31 Higgins Higgins Meerveld Meerveld GP 26

32 GP GP GP 3 1 PGB 2 Nissen 27

33 Burns Higgins NHS NHS HoNOS Health of the Nation Outcome Scales 5 de Burgh 1 28

34 1 1 Lavallart

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36 BPSD BPSD BPSD BPSD

37 Burns BPSD Burns BPSD BPSD behavioral and psychiatric symptoms of dementia Burns FDA 32

38 2009 Sube Banerjee Paul Burstow BPSD GP agitated BPSD watchful waiting Burns 33

39 Burns Lavallart BPSD 1 BPSD BPSD 2 UCC BPSD UCC NPI Neuropsychiatric Inventory UCC 60 2 nurse assistant BPSD 100 BPSD 34

40 BPSD Nissen BPSD Meerveld 33 35

41 BPSD 1 NHS Afifa Qazi GP Burns Qazi GP BPSD GP Qazi 36

42 Higgins Lavallart BPSD Lavallart BPSD

43 Lavallart GP 12 BPSD 2 1 DBMAS BPSD DBMAS de Burgh DBMAS Dementia Behaviour Management Advisory Service DBMAS DBMAS BPSD GP DBMAS GP GP National Dementia Helpline DBMAS DBMAS agitated 38

44 Geriant Meerveld 1 Geriant Geriant Geriant Geriant

45 Geriant Buurtzorg Nissen BPSD BPSD

46 3 3 National Prescribing Service de Burgh de Burgh National Prescribing Service GP National Prescribing Service National Prescribing Service 41

47 , , Burns 500 BPSD 10 42

48 BPSD BPSD BPSD BPSD Burns BPSD agitated Burns Qazi Higgins Burns 1 43

49 Meerveld Meerveld 44

50 de Burgh mixed funding model 1 de Burgh GP mixed funding model 1 BPSD Burns de Burgh

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52 47

53 Carers Act Higgins Higgins National Carer Strategy 1 48

54 2 NHS

55 Carers Recognition Act de Burgh 2010 Carers Recognition Act Lavallart Lavallart GP 50

56 ,000 Nissen Nissen

57 McCrone McCrone Nissen Nissen 1 Burns Sheffield Dementia Information Pack 52

58 Sheffield Dementia Information Pack Burns 3 2 Prime Minister s Challenge on Dementia 4 1 McCrone 1 Nissen

59 EU Eurocarers 10 1 Higgins 1 Higgins voluntary sector organization 54

60 2 1 1 NHS UK Crossroads Nissen 2 Meerveld Meerveld 55

61 Meerveld

62 Lavallart Nissen Nissen 57

63 McCrone Higgins Burns 58

64 Burns de Burgh

65 Lavallart 1 60

66 Espace éthique 61

67 2 1 Mental Capacity Act Burns 1 Espace éthique Emmanuel Hirsch Lavallart Burns 2005 Mental Capacity Act Burns

68 5 1 2 unwise decision 3 4 Mental Health Act enduring power of attorney lasting power of attorney lasting power of attorney Court of Protection advanced decisions Office of Public Guardian

69 2007 Burns Higgins Higgins Nissen Nissen 64

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71 Higgins Meerveld Meerveld 2 1 de Burgh de Burgh

72 advance directive Lavallart Lavallart 1 1 social representation 2 67

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74 Burns Burns Nissen 69

75 70

76 Nissen Burns 71

77 Nissen McCrone

78 Burns Burns 1 Living well with dementia GP Nissen Nissen McCrone

79 5 McCrone McCrone Burns

80 1 1 1 QALY McCrone NICE National Institute for Health and Clinical Excellence NICE QALY QALY QOL QOL QOL QOL QOL 1 QALY 75

81 1 McCrone NICE Meerveld 76

82 Meerveld 2 GP GP McCrone 1 GP 1 77

83 7 1 5 Burns Burns McCrone Higgins GP 78

84 McCrone 1 de Burgh Lavallart Lavallart 79

85 de Burgh 80

86 Meerveld European Research Program Lavallart

87 Higgins 82

88 Burns Higgins 3 implementation group de Burgh 2 Lavallart 83

89 Nissen 3 Nissen

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